Life is getting better and better for our family. We have still not used Gemma’s tube, but she still has it in her stomach. We went to see the surgeon who inserted the mic-key and he advised that if it is not worrying her or getting infected, we should leave it in for a while longer. We have decided to keep it in until Gemma is very comfortable with eating, i.e. when she asks for food, or when she truly understands how she feels when she has a low.
She is currently going through a bit of a low patch. She has been having hypo’s (below 2.5) at least once a day for the last 5 days. She is showing no symptoms of these hypo’s, but at least her blood sugars are recovering quickly when she has something to eat or drink. She has had a runny tummy, and as we’ve mentioned before, this for some reason, is always associated with low blood sugars. If anyone may have any explanation for this please could you share it with us. Our management plan at the moment is to just check her blood sugar 15 minutes earlier than usual, and give her polycose water when her sugars are lower than 3.5. Otherwise we are sticking to the plan that we shared with you in our previous blog. Feeding her is getting easier, she is starting to explore different tastes and textures and we can see that she is starting to enjoy some foods more than others. She decided she didn’t like mashed banana because it looks like baby food, so she has eaten a few whole banana’s. She loves chicken, and although she takes a long time to eat a few pieces, at least she is starting to get some protein in her system. She even had a spoon of tuna fish the other day. Every day she is eating a tiny bit more food of her own accord, and this is extremely positive. I am certain that we will feel confident to take her tube out sooner rather than later. Gemma has recently started going to the local nursery school. She leaves home at 9am with her little Maisy Mouse backpack filled with some biscuits or treats (which she probably gives away to her friends) and some water. She sets off on her own down the little hill and we fetch her at about 11am (or when she is due to eat something). For those of you who don’t know, we run a lodge (Malealea) set in the middle of a rural village. The school she is going to is literally out the gate of the lodge and down a 100m hill. I needed to explain this in case you may be thinking that we are letting our three year old out on the streets alone with traffic etc. None of that exists where we live. Bryce continues to do well. Gemma’s eating has had a positive influence on him. He is eating very well now, so no need to plan a trip to Graz for him LOL. His latest funny sayings are to-now (for when he wants something now), ugly nono (fly), and Gemma has recently referred to her dad's beard as bered. The busy season at the lodge brought with it many playmates for Gemma and Bryce and loads of family visiting, which was truly wonderful. We still remain positive that this year will continue to be a good one, and thank you to everyone for still following Gemma’s progress. Love to you all.
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